Bit of a scare...
It's been a week...
It would've been a longish week anyway I cut it, 4 days in the office and 1 doing the charity thing in London on Tuesday... An early start, an important meeting, an afternoon at the CHF offices followed by popping to the British Museum to see the Benin Bronzes and then a bit of shopping before coming back...
And on Oxford Street the phone goes... My cardiologist, he's had the numbers from my MRI they don't match the numbers from my echo a couple of months before hand, can I pop in and see him on Friday afternoon, we need to chat through them...
SHHHHHHHHHHHHHHIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIITTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTT
There is no other way of putting it.
All the running, the PB's and the climbing, and races to come disappeared from my head... Worst case scenario - pulmonary valve has gone out of commission (a possibility for all fallots) and needs an urgent op. Best case scenario... at that point there was no best case...
The inner sanctum (those three or four friends who would be the ones delivering food to hospital while I was in, and handling any enquiries from people about how I was doing) knew that evening, a few more and my bosses at work the next day. I made no secret of it, but given the lack of clarity I wasn't going to broadcast it either... A passing reference that I'd be getting the results on Facebook and back to doing my job, and a couple of gentle exercise sessions... ok, that's a blatant lie - running 5 miles with a hard set of traverses in the middle isn't gentle!
But it was needed for my brain...
And so the day dawned and the hour clicked over...
And there had been an error in the calculations, my valve will need replacing at some point, but not now, maybe not for years... It needs monitoring, as it always has done, and MRIs are going to be a feature every 2 years or so... I can live with that. Its part of being a GUCH, an ACHDer, a Fallots. Part of being me!
So worry over, for now. The inner sanctum are stood down, the plans which would have swung into place have gone back on the shelf and the sense of relief is very, very palpable...
And so back to the fun stuff!
Tomorrow is the OU day school, followed by a trip to Baslow for a 1 day photography course on the edges above Chatsworth on Sunday.
I recently wrote something to try and raise awareness (when I hear if it works you will) that I'll never take walking or running or climbing for granted. This week is why...
TTFN
Paul
It would've been a longish week anyway I cut it, 4 days in the office and 1 doing the charity thing in London on Tuesday... An early start, an important meeting, an afternoon at the CHF offices followed by popping to the British Museum to see the Benin Bronzes and then a bit of shopping before coming back...
And on Oxford Street the phone goes... My cardiologist, he's had the numbers from my MRI they don't match the numbers from my echo a couple of months before hand, can I pop in and see him on Friday afternoon, we need to chat through them...
SHHHHHHHHHHHHHHIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIIITTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTTT
There is no other way of putting it.
All the running, the PB's and the climbing, and races to come disappeared from my head... Worst case scenario - pulmonary valve has gone out of commission (a possibility for all fallots) and needs an urgent op. Best case scenario... at that point there was no best case...
The inner sanctum (those three or four friends who would be the ones delivering food to hospital while I was in, and handling any enquiries from people about how I was doing) knew that evening, a few more and my bosses at work the next day. I made no secret of it, but given the lack of clarity I wasn't going to broadcast it either... A passing reference that I'd be getting the results on Facebook and back to doing my job, and a couple of gentle exercise sessions... ok, that's a blatant lie - running 5 miles with a hard set of traverses in the middle isn't gentle!
But it was needed for my brain...
And so the day dawned and the hour clicked over...
And there had been an error in the calculations, my valve will need replacing at some point, but not now, maybe not for years... It needs monitoring, as it always has done, and MRIs are going to be a feature every 2 years or so... I can live with that. Its part of being a GUCH, an ACHDer, a Fallots. Part of being me!
So worry over, for now. The inner sanctum are stood down, the plans which would have swung into place have gone back on the shelf and the sense of relief is very, very palpable...
And so back to the fun stuff!
Tomorrow is the OU day school, followed by a trip to Baslow for a 1 day photography course on the edges above Chatsworth on Sunday.
I recently wrote something to try and raise awareness (when I hear if it works you will) that I'll never take walking or running or climbing for granted. This week is why...
TTFN
Paul
Glad all is good x
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