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Showing posts from February, 2018

It's Grim up North (West) - please share...

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This is an article written by the four North-West England Adult Congenital Heart Patient Reps...

Please share so people know what's been going on, and where to go if their in our area and haven't had an appointment for a while...

[This was written for a national charity, and they've given us permission to share it ahead of publication]

The closed facebook group for the adult patients in the NW is

https://www.facebook.com/groups/MACHnetwork/

The Helpline Number is 0161 276 7959 (please leave a message with a number for a return call).



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Being a patient rep often sounds like a fun job, you get to spend more time with the clinical teams that support and look after us, help improve services and generally make sure that the patient voice is heard.For us in the North West that’s been done through the patient reps who were chosen by the regional focus group; principally Anna Burns and Paul Willgoss. We’ve worked closely with the regional congenital heart charity (the Chi…